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EFVA March 2018 Newsletter

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NEWSLETTER
March  2018
PROMOTE AWARENESS, PROVIDE ASSISTANCE 
WWW.EPILEPSYVA.COM

EPILEPSY FOUNDATION OF VIRGINIA 
DONATE
Don't forget to "Like" our Facebook Page and "Follow" us on Twitter!
Williamsburg Support Group

Fantastic turnout for our Williamsburg support group. There was about 18 participants in a support group led by Dennis and Missy Terry. This was an amazing opportunity for people with epilepsy to meet one another and connect about problems they may be facing. Allowing everyone to socialize helps spread information that could help with problems in the future. We are happy for the number that came and hope they found it informative and enjoyable and we see them again soon. 


 
Justice Bartley

Two months ago, Justice Bartley hurried out of a Virginia Tech locker room to call his mother. He wanted to break the news of his scholarship to her before she saw the viral video of the team celebrating him or the numerous announcements on Twitter.

It took a few calls to get in touch of her, but they finally connected — a special moment with a person who knew about what he’d been through more than anyone else.

Last week in Brooklyn, Bartley was running around the locker room at the ACC Tournament recording playful videos and pretending to interview teammates with a banana. He’s a part of every joke. He’s comfortable now in a way that looks natural. That comfort took a long time for him to find.

“It’s incredibly important for me to talk about my epilepsy,” Bartley said. “I’m passionate to talk about it, too. There’s a lot of kids out there who deal with the same things. It’s not the things you see on TV. You don’t foam at the mouth; you don’t cut your tongue off. … [I want to] to show people that you can still achieve your dreams. Thank you Justice for being such an asset! 

Purple Day 2018
Purple day is a day to raise awareness about epilepsy. It is celebrated around the world. Purple day was established by Cassidy Megan in 2008 to bring awareness to epilepsy. We are hosting three separate Purple Day's which you can attend in Midlothian (near Richmond), Winchester, and Roanoke. It's a family oriented event and open to all. There will be refreshments, giveaways and doctors/nurses to provide information. Check our calendar for times and locations!
Creative Writing
Amanda Stacks is herself an epilepsy hero who was inspired by Art Therapy in Northern Virginia to start a creative writing course. 
Contact astack@masonlive.gmu.edu or srb3m@virginia.edu
Laura French
Laura French is an accomplished journalist who's work has earned her national recognition. Laura is also a friend of the Epilepsy Foundation of Virginia. She has shared her story which can be found on our website on our homepage or in our videos. Learn more about Mrs. French by watching her on CBS 6 or from her story at https://www.epilepsyva.com/
Sometimes You Just Need Some Fun
Thank you Daniel Hayes for supporting EFVA with these events. The EFVA staff will participate in the documentary  “Queen of the Capital” (http://bit.ly/Queenofthecapital): 

“I am overwhelmed with joy after watching this beautiful film,” said Gina Washington, Regional Director of the Epilepsy Foundation of Virginia. "Being featured in Queen of the Capital gives us a great opportunity to showcase not only what we do, but how someone suffering from epilepsy could be a government bureaucrat, a grass-roots fundraiser, and a drag queen."  

Major Donors this February
Supernus
UCB
Morgan Stanley


 
The Virginia Epilepsy Community
thanks you for all your help!

 
Upcoming Events
DONATE OR REGISTER FOR EVENTS by clicking "DONATE" and choosing one of the following options: 

Richmond Awareness Walk | Sunday March 25th 1-3 Brandermill Sunday Park (1-3 pm) 804 548-9875
Winchester Purple Day | Monday March 26th (11am) gina1216@comcast.net
Roanoke purple day celebrations call Kay Hornsby 540- 314-8688
Creative Writing Course | Saturday April 7th (11am) astack@masonlive.gmu.edu or srb3m@virignia.edu

Registration for Richmond Awareness walk are $ 35 and are counted as donations.
Winchester purple day and creative writing course are free but
additional donations are always appreciated!

For information about bike ride, walks, and other events go to www.epilepsyva.com/calendar
Interested in EFVA Financial Documents?
Follow these links:
560 Ray C. Hunt Drive
P.O. Box 800754 - UVA Medical Center

 Charlottesville, VA 22903

 
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