EFVA’s Newsletters & Annual Reports


June 2025 Newsletter

Epilepsy Foundation of VA June 2025 Newsletter
JUNE 2025 NEWSLETTER
 
EPILEPSY FOUNDATION OF VIRGINIA 
PROMOTE AWARENESS, PROVIDE ASSISTANCE 
WWW.EPILEPSYVA.COM
DONATE TO KEEP OUR PROGRAMS GOING!
Don't forget to like our Facebook Page and
follow us on
Instagram and X (Twitter)!
2025 Scholarships Announcement
The Epilepsy Foundation of Virginia (EFVA) is proud to announce the winners of the Elizabeth Hart Dalton Memorial Scholarship, awarded to two outstanding students: Messiah Sears and Keira Lozada. These students have demonstrated exceptional resilience and dedication in their journeys with epilepsy.

Established through the generosity of the Dalton family in memory of Elizabeth Hart Dalton, the scholarship awards $2,500 each to Virginia-based students currently managing epilepsy or seizure disorders.

This year, EFVA received 9 applications. Applicants were evaluated based on their academic performance, college acceptances, and most of all, their personal essay describing how they have overcome challenges associated with epilepsy. Succeeding academically while managing epilepsy requires persistence, discipline, and a great deal of planning—qualities that both recipients clearly embody.

The two recipients selected represent the vision of the scholarship, showing courage in living with epilepsy, a commitment to their education, and perseverance in removing the barriers their condition presents.

 
In the words of Keira Lozada:  The more I’ve reflected on it, though, the more I’ve marveled at the strength that this epilepsy has given me. Unbeknownst to me, my parents, and my teachers, I’ve struggled to sleep and concentrate well, but has that stopped me? No. I’m the salutatorian of my graduating class, and I’m going to attend my dream school next year.

And as Messiah puts it: Although Epilepsy has limited me at times physically it has not limited my education. I am so excited to attend college this Fall. A way that I preserved was on May 1, 2025 I was admitted to the hospital in the intensive care unit. I would not stop having seizures and developed fluid on my lungs. Once I was released, I had a different outlook on life and told myself that once I felt better, I would lead every day with a positive outlook.
The Elizabeth Hart Dalton Memorial Scholarship is open to high school seniors or college freshmen entering their first fall semester who reside in Virginia, are under a physician’s care for epilepsy, and are undergoing treatment or taking anticonvulsant medications.

To learn more about the scholarship, visit https://www.epilepsyva.com/scholarships
Epilepsy Clinic at Bristol
Executive director Suzanne Bischoff visited an epilepsy clinic in Bristol in southwestern Virginia, speaking with 29 epilepsy heroes and their families. She was very much impressed by a grandmother and grandfather who had taken 4 grandchildren with disabilities into their home. They have some acres around the house and teach the kids to grow vegetables. The non-verbal young epilepsy hero with them looked peaceful and content, petting her toy with great enthusiasm. The Exec asked herself where the kids would have been if it was not for their grandparents.

Other families present had some disagreement about their dog’s behavior. Some family members felt a seizure alert dog should behave better. Other family members said the dog had not been treated well. EFVA has worked on lots of problems with seizure alert dogs. Oftentimes, a family does not understand that seizure dogs need regular food, rest and exercise- just like any other dog! The EFVA advises that a family who is not content approach the organization who trained the dog and as a second step, give the dog to the SPCA. All in all, a very interesting clinic day!

 

(For more on seizure dogs, see the resource booklet created by EFVA.)
"What does an epilepsy nurse navigator do?"
The Virginia Epilepsy Support Group's April meeting featured an epilepsy nurse navigator, Margaret "Mimi" Mahoney, MSN, RN, CNRN! Joining us from VCU Neurology, Nurse Mimi shared a little bit about herself and her journey to becoming a nurse navigator, how she ended up in epilepsy nursing, and what her day-to-day work looks like.

What is a nurse navigator?
 
Nurse navigation is a fairly new role in general! These are nurses who are primarily meant to serve as educators and go-to people for the patients they work with, often at a more individualized and personal level than other nurses. Their training and background give them more insight into their particular focus- so for Nurse Mimi, she knows more about the clinical side of epilepsy and can help her patients through a lot of facets of their epilepsy treatment, care, and questions.

Who came up with nurse navigation?

Dr. Harold Freeman is credited with the first instances of nurse navigators. He noted some ways that socioeconomic barriers can impair access to medical care, and witnessed how connecting patients, providing early screening, and keeping patients as informed as possibly led to higher survival rates. Thus, nurse navigation was born!

(For more, see this academic paper by Dr. Freeman.)

Do all hospitals have a nurse navigator?

 
No, but they are becoming more popular as hospitals and clients alike see how great they are and how much they can help patients and improve outcomes!

Do all epilepsy centers have a nurse navigator?

No, nurse navigators are typically found in high-level epilepsy centers (such as VCU's Level 4 Credentialed Epilepsy Center or INOVA Hospital's).

How is a nurse navigator different from a nurse?

Nurse navigators are more like a cross between a nurse and a social worker, but distinct from both- they serve more patient/relations but are familiar with all the clinical side of the hospital, procedures, and medications. 

In short, nurse navigators are primarily educators! They mainly act as a go-between for patients, nurses, and doctors, and serve as a touch-point and resource for patients and their families, building trust and a personal relationship with their patients.

What does a day in the life of an epilepsy nurse navigator look like?
 
Mimi discussed what she might do in a typical day as a nurse navigator. These could include:
  • screening patients
  • updating nurses
  • investigating barriers to treatment and addressing them
  • understanding the clinical side of epilepsy
  • interacting and following up with patients (phone, in person)
  • providing patients with resources and making sure sure patients have what they need
After her presentation, Nurse Mimi offered advice on how to get EMU admission, and some epilepsy heroes were able to share their stories or stories about Nurse Mimi herself.

Her work potentially shortens the surgical work-up by a year!

Thanks to the epilepsy heroes for tuning in with us to find out more about how nurse navigators can help epilepsy heroes!
New Booklets at epilepsyva.com
The EFVA team has been hard at work revising our booklets! The new versions that are available on our booklets page can also be found below (click for PDFs):

Click here for the booklet on Memory (updated 11/2024)

Click here for the booklet on Driving (updated 2/2025)

Click here for the booklet on Epilepsy and Employment (updated 4/2025)

Click here for the booklet on Safety Tips (updated 5/2025)

 
Ammon's Horn Initiative:
 
 
Our own Dr. Graf has initiated an Ammon's Horn Conference for neurologists in Norfolk, with the help of Amy Dudeck and Lauren Sos. The Epilepsy Foundation of Virginia (EFVA) is hosting this effort with the help of sponsors. As of now, Neurelis has sponsored the event.

EFVA hopes to convince neurologists to send their clients to EFVA's webpage and use EFVA as a community resource!

 

New study: Pollutants and Epilepsy
A new study reveals air pollution may contribute to the development of epilepsy, a brain condition that causes seizures.

The paper, published in Epilepsia, found an association between long-term exposure to air pollution with new cases of epilepsy in adults in Ontario.

Researchers at London Health Sciences Centre Research Institute (LHSCRI) and Western University’s Schulich School of Medicine & Dentistry used data from the Canadian Urban Environmental Health Research Consortium. Looking at data from adult Ontario residents without other major health conditions like brain cancer, researchers found 24,761 new epilepsy cases over six years from 2010-2016. The study found that higher exposure to fine particulate matter (a component of air pollution) increased the likelihood of developing epilepsy by 5.5%, while ozone, another component of air pollution, increased it by 9.6%.

The study is the first time databases were used to make a direct connection between new cases of epilepsy in adults in Ontario and long-term exposure to air pollution. “Our hope is that this research can help inform environmental policy and ensure there are adequate resources and health care for epilepsy in areas that have significant air pollution,” says Dr. Jorge Burneo, Scientist at LHSCRI, Neurologist at London Health Science Centre (LHSC) and Professor at Schulich School of Medicine & Dentistry.

According to the World Health Organization (WHO), 99% of the world’s population breathes air that exceeds WHO air quality limits. Scientific studies have linked air pollution to a wide variety of health issues, and now there is additional evidence on its association with new onset epilepsy.

“This research is important because it has the potential to drive changes that could ultimately reduce the number of new epilepsy cases,” says Tresah Antaya, PhD, Postdoctoral Associate at Western University in the Department of Clinical Neurological Sciences. “We know seizures can significantly affect quality of life — limiting a person’s ability to work in certain industries, drive, or live independently. Our hope is that this work will contribute to a future where fewer people are affected by epilepsy.”

As a next step in this work, the research team plans to explore the effects that forest fires may have on health, including epilepsy. “Our environment plays a big role in our health,” adds Dr. Burneo. “Our research aims to better understand these connections with a goal of improving both planetary and human health.”


Interested in finding out more?

Sources and further reading:
"Air pollution may increase epilepsy risk, new study suggests" by EpilepsyU (2025)
"The association of air pollution with new-onset epilepsy" original review article by Antaya et al (2025)
 
2025 is the 10 Year Anniversary of the
Tour de Midnight!

Thank you to UCB for being the first platinum sponsor for the 2025 Tour de Midnight, and to Bon Secours being the first medical institution to support the 2025 Tour de Midnight.

Thank you, sponsors, for your support of Virginia's epilepsy heroes!

 
Interested in sponsoring the Tour de Midnight? See here for our sponsorship prospectus!
 
Check bikereg.com for the latest TdM updates
9th Annual Winchester Seizure Freedom 5k
Join us for the 9th Annual Seizure Freedom 5K, organized by the Winchester Neurological Consultants group!

When: October 11, 2025. Race begins at 9am
Where: 225 Al Smith Circle, Berryville, VA 22611

$25 registration fee and prizes for the 5k participants!

Other activities on race day include a 1-mile kids race, raffles, a pie eating contest, live music, and seizure education. 
 
House Bill 2104: A Win for Virginia Epilepsy Hero Students
Above: Epilepsy hero Sinead Baron

Starting July 1st, 2025, House Bill 2104 will be in effect in the state of Virginia.

Kelly Colan-Baron and daughter Sinead Baron (pictured below) approached Virginia House of Delegates Representative Bennett-Parker after Sinead's school denied a request for her to be allowed to carry her seizure rescue medication and have teachers administer it. Prior to this, seizure rescue medication was required to be kept in school nurses' offices.

Sinead Baron testified before the education subcommittee in support of the bill. 

Her high school campus has around 3,400 students and three people in the nurses office.  There is very little possibility without self carrying her medication that Sinead could get assistance if needed.

For more on the bill, see https://legiscan.com/VA/bill/HB2104/2025
Epilepsy hero Sinead Baron (R) and mom Kelly Colan-Baron (L)
New Developments in our "Use A Helmet, Prevent Epilepsy" Grant

Since EFVA received the Invest In Others grant for its USE A HELMET campaign in February 2025, we have distributed 1500 campaign flyers to bicycle clubs around our Commonwealth.

In conjunction with the Brain Awareness Outreach group at the University of Virginia, which is run primarily by graduate student and undergraduate volunteers, EFVA has shared the Use a Helmet, Prevent Epilepsy message with:

 

23 in-class visits to
34 classes of elementary, middle, and high school students in the Charlottesville area,
reaching 
650-680 students!



Additionally, at a clients'  request, EFVA is working on creating some USE A HELMET yard signs that will be available to order online! Please stay tuned- more info coming soon.
 
June Paint Nights
Looking to let out your creative side? Join EFVA and other epilepsy heroes at our virtual Paint Nights! Attendees paint, draw, sketch, and use their imaginations to respond to artistic prompts.

Paint Nights are 3 Tuesdays a month, from 6-7 pm! Participants use their own materials to create artworks and share them with others during this fun and engaging event.

Email Lowell Evans at efva.evans@gmail.com or Lauren Shirley at efva.lauren@gmail.com to request the Zoom link.

 
See our calendar for upcoming paint nights
If you are an epilepsy hero in need of a paint kit to join in, please contact us! We have paint kits to distribute thanks to the Jack and Jill Club of Reston.
Epilepsy in the news: seizing dog saved by his adopted brother
An epileptic French bulldog's life was saved by the family's other dog after multiple grand mal seizures while his owner was at work.

Caught on home video, Reggie the boxer rolled the seizing bulldog named Yogi over to prevent him from aspirating, and spent hours watching over him and barking for help. Their owner wrote about the incident on Facebook, where it quickly touched hearts and went viral.



Sources:
People. A French Bulldog Had a Seizure When No One Was Home. Incredible Video Captured the Other Dog's Reaction.
Miami Herald.
’Hero’ dog saves Frenchie during seizure — and watches him for hours, video shows.
 
Direct Assistance Reaches More Epilepsy Heroes In Need
Direct Assistance has now reached over 380 epilepsy heroes! That is more than $90,000 in direct assistance to Virginians with epilepsy.

Please know that our staff and volunteers spend a lot of time, effort, and people power on getting funds to those who need it most. We know that this is a crucial program for so many epilepsy heroes, and we want to continue running this program for as long as we can.

Epilepsy heroes can help us by sending clear, legible pictures of their pill bottles. They must include:
  • Name of patient
  • Name of medication
  • Date dispensed or date of refills
If the pictures cause difficulties, the client can ask for a letter from the epileptologist/neurologist, stating that the client is under current care for epilepsy. The client can send this letter as an attachment.
 
UPCOMING SUPPORT GROUPS
See all support groups on epilepsyva.com/calendar
Flyer for the Inova Epilepsy support group. They meet via microsoft teams on the 1st Tuesday of each month.
Inova Neuroscience and Spine Institute
1st Tuesday every month
Link to flyer


 
Flyer for the central VA chapter of EFVA support groups. They meet on the 2nd Monday of each month at 6pm.
EFVA Central Virginia Chapter
2nd Monday every month
Link to flyer

 
Virginia Epilepsy Support Group
3rd Wednesday every month
Link to flyer

 
SHARE flyer. For more info, google "DC Metro Epilepsy Meetup".  Meets both hybrid and virtually, twice per month! Weekend trips in VA. Social gatherings. Over 500 members. For more info contact Fairfax County resident Marc Starnes at marc.starnes1@gmail.com or 571-278-6524.
S.H.A.R.E.
Dates and times change, check website
SHARE invites epilepsy heroes of the DC metropolitan area, Virginia, and Maryland region to meet with other epilepsy heroes over zoom and in person! Meeting times vary each month- for more information, check the website.

Next SHARE meeting is virtual on Tuesday, June 24th and features a guest speaker and SHARE member discussing seizure alert dogs!

Curious about seizure alert service dogs? Or have one? This presentation/discussion by SHARE member Dr. Elyse Lee Osterweil, Ph.D. will provide an overview of owner training service dogs specifically for seizure alerts and responses before, during, and after seizures. She is training her dog currently. She will share her journey with finding and training her own seizure alert service dog (SD), the critical tasks her service dog in training (SDIT) can/will learn to perform, demo some of the tasks her SDIT can do, the value of training your own SD, etc. She's happy to answer any questions you have about the process, some of the legal protections for SDs under the ADA, and (if any has trained their own seizure alert dog) hear your own experiences and stories about training seizure alert dogs.

 
THANK YOU FOR YOUR SUPPORT!

Our epilepsy community is stronger each year because of YOU.
Thank you. Your donations help us to continue to educate, empower, and advocate for and with people living with epilepsy
MAKE A DONATION
CALENDAR OF EVENTS
Register now for programs and events offered by the EFVA!
 
epilepsyva.com/calendar
1 in 26 people will be diagnosed with epilepsy during their lifetime.
3.4 million in the united states live with epilepsy. White text over a purple outline of the contiguous USA.
EFVA 2023-2024 Financial Documents:
 
 
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560 Ray C. Hunt Drive
P.O. Box 800754 - UVA Medical Center

 Charlottesville, VA 22908

 
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Epilepsy Foundation of Virginia · 560 Ray C. Hunt Drive · Charlottesville, Va 22903 · USA

 
 

EFVA Annual Report for Fiscal Year 2023-2024

Annual Report of the Epilepsy Foundation of Virginia (EFVA) 2023-2024
 
2023-2024 ANNUAL REPORT
EPILEPSY FOUNDATION OF VIRGINIA 
PROMOTE AWARENESS, PROVIDE ASSISTANCE 
WWW.EPILEPSYVA.COM
DONATE TO KEEP OUR PROGRAMS GOING!
Dear Donors:

During the last fiscal year, from July 2023 to July 2024, many of you were so kind as to donate to EFVA or have your companies or institutions donate. Thanks to your generous giving, we were able to continue the many programs we have for the 85,000 Virginians with epilepsy. In the annual report below, you will find an expenditure pie chart, as well as a list of the programs, which we can keep running thanks to your financial generosity. 85,000 Virginians with epilepsy are in your debt.

Gratefully yours,
Suzanne Bischoff
Executive Director
Epilepsy Foundation of Virginia
Go to www.epilepsyva.com/calendar for more information on events.
DONORS
RHODIUM DONORS - $20,000 and above
Dr. Suzanne Bischoff
 
PLATINUM DONORS - $10,000-$19,999
 
GOLD DONORS - $5,000-$9,999
Dr. Paul and Dr. Deren Lyons, Sarah Colson, Patricia C. Lane, Walmart, Bon Secours Mercy Health, Loyal Order of Moose Inc., UVA Health, INOVA, Jazz Pharmaceuticals, Inc., SK Life Science
 
RUTHENIUM DONORS - $1,000-$4,999
John and Deborah Lannen, Brandon Clodius, Anonymous, Blackbaud Giving Fund, Dr. Stacey Epps, Fidelity Charitable, TowneBank, Edward Jones, James Wood High School, Pivot Physical Therapy, Luck Stone, John Wall, Sara Budic, Derek Bauer, Charles Shade, Virginia Energy and Lighting, R.A. Laraway, Neurelis, Carol and Donald Craighead, Dennis Terry, Jeff Roseme, Lauren Llanes, J Best, Mr. Robert and Mrs. Megan Tschannen-Moran, Morgan Stanley, Winchester Neurological Consultants, Inc., Midnight Brewery, Ameriprise Financial, Glenn Catalano, Laurie Sheppard, TwelveStone Health Partners, Nicole Tritaik Insurance Agency, Inc., Verna Cook, Kelly Levasseur, United Way of South Hampton Roads, Catalyst Pharmaceuticals, Inc., Medical College of Virginia Foundation, Home Infusion Richmond, LLC, UCB, Inc., Sentara Health, Reston Bicycle Club, Patient First, Cleveland Foundation, Heather Colson
 
IRIDIUM DONORS - $500-$999
Nathan Fountain, Dr. Alan Towne, Wendy Parker, Michael Dalton, Clodfelter Machine Inc., Charles & Nancy Rosenblatt Fund of the Tidewater Jewish Foundation, Inc., Brian P. Washington, NeuroPace, Steven Roberts, Wells Fargo Clearing Services LLC, Paul Grabb, Peter Bloom, PayPal Giving Fund, Kelly Gil
 
OSMIUM DONORS - $100-$499
Kevin Chandler, Charles Clarke, Bobby & Tania Blackwell, Vincent Brigagliano, Daniel Heneghan, Walt & Lisa Stone, Tabb Davis, Miriam Blackmon, James Heneghan, James Hall, William & Kathy Hall, Taylor Manley, Walter Manley, Patricia Boyd, Susan Custer, Valerie Acosta, Heather McLeod, Josie Saunders, Independent Order of Odd Fellows, Katherine Lannen, Douglas and Jennifer McElhinney, Nalini Ayya, Diane and George Edgar Wagoner, The Gray Insurance Co., Martha McLain, Deborah Harriman, David and Linda Fehleisen, Ann Layton, Lisa Brooks, Fay and Jonathan Fretwell, Gregory Cline, Thomas Junod, Dial Love, Jay Snyder, Elizabeth Ruckman, Amanda Wilson, Beth Gourley, Francis Heneghan, Amy Wainright, Lindsey Feldman, Andrew Feldman, Linda Mantiply, Karen Fagan, Mark Terry, Susan Armentrout, Justine Cohen, Paul Greeley, William Clarke, Moshe Heyn, Michael Wallace, Kitty Blackmon, Jeffrey Gardner, Durrell Boyd, Orien Dalton, James Neale, John Clarke, Carolyn Oglesby, Sally Witt, Janet Baggott, Lisa Tuggle, Shantese Smithers, Roselyn Cottrell, Robin Scott, Renee Williams, Mary Murphy, Susan DeLancy, Eric Floranda, William Heneghan, Ellen Purpura, Ronny Laver, Todd Brock, Lawrence Morton, Amy Davis, Ann Johnson, Ned Farley, Jose Robles-Maldonado, Caymran Cummings, Sandra Dicamillo, Kim Clark, Catherine Kominic, Heather MacLeod, Martha H Hartz, John and Jean Carter, Herbert and Elon Perlin, Donna Mercer, Vinny Donnelly, Laurien Dowdy, Carol Lensch, Erik Lensch, Kroger, Epilepsy Foundation, Benjamin Knowles, Beth Owermohle, Earl So, Kimberly Jones, Laura Agaba, Mary Feltault, Penny Singlemann, Ruchelle Buenaventura, Tiffany Keever, William Manley, Draft Electric & Plumbing Service, Inc., Stephan and Shirley Corbin, Angela Meade, Zoe-Ann Copeland, Jordan Mooney, Anonymous
 
PALLADIUM DONORS - up to $99
Dr. A. M. Rijke, Sibylle Rotach Hunt, Peggy Sloan, Gina Washington, Charles Wilber Jr., G. Frank and Tracy Dunlap, Jeffress and Teresa Given, Joe and Brenda Tankesley, Patricia and W.C. Arey, Jean Gibson, Donna Garner, Pam Cowgill, Nancy Hall, Leegie Kirby, Marianne Simmons, Sue Smith, Jennifer Faith Strobel, Dale and S. Lee Heizer, James and Teresa Hott, Samuel and Beverly Richardson, Carol Heizer Wojciechowski, Ann Heizer, Joseph Emmett Lail, Holtzman Oil Corporation, Judy and Guy Eavers, Mary Frances Chittum, Fredericksburg Regional Food Bank, Stacey Little, Mark Stevens, Brittany Yost, Wendy Talarico, Joseph DiPiro, Joanna Diaz, Jason Heyn, Marty Heyn, John Heyn, Gary Weidhaas, John Kinney, Patricia Mueller, Travis Marley, Amory Dugan, Eric Mayl, Salome Loera, Adam Liebler, Mary Kauffman, Elhum Shamshiri, Lillian Reynolds, Barbara Donegan, Shirley Ramsey, Doreen Marquis, Ken Kwartler, Ginger Germani, Cary Doak, Kimberly Warren, Angie Fox, Kathryn Nichol, Sheila Rieser, Alicia Lugg, Jeff Elias, Kathie Kelly, Gina Henderson, Dawn Legg, June Walthall, Donna Broshek, Alycia Winter, Rashell Younger, Liam Winters, John and Patricia Smith, Charles and Lou Ann Belvin, Bank of America, Carol Thompson, Janice Tokarsky, Erica Wolfe, Rhiannon Maxton, Lola Shank, Pat McClellan, Donna Applebee, Jeremy Ingram, Melinda Monet, Laura Ford, Jason Rush, Joey Jarvis, Bryant Clarke, Sean Plunkett, Rhonda Deputy, Janet Lynn, Doris Freund, Amy Kritzman, Debbee Kiel, Holly Schrank, Dale Chimerofsky, Jim Fry, Randall Anthony, Owen Thompson, Michelle Eddy, Nancy McMicken, Robert Sillmon Jr., Frank Santa, Colin William, Rosalba Rosario, Theodore Stout, Shannon Reardon, Cathy Padgett, Wendy Dee, Nancy Cundiff, Rhoda Ballantyne, Tyler Hawkins, Amanda Faith, Maggie Shanley, Kim Flanders, Deanna Reger, Gmen RC, Russ Brickey, Alice Huggins, Marianne Bowen, Tami Phoenix, Steve Heller, Margaret Brooke, Alejandro Mattiuzzo, Amie Knapp, April Marshall, Erin Dudley, Katie Zimmerman, Laura Lay, Susan Cohen, Heather Davis, Elizabeth Marie, Shannon Martin, Alejandro Mattiuzzo, Michael Siefring, Sandra and Lynwood Hutchens, Carlton and Sharon Brydge, Jamie Swann, Brielle Parker, Sherry Buenaventura, Julie Mick, Leesa Gauthier, Malinda Hargrove-Miller, Richard Rencher, Devonee Shearer, Anonymous
 
Thank you to our 53 anonymous donors who generously gave this year through social media, including through birthday fundraisers on Facebook, via Instagram, and through Humble Bundle!
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560 Ray C. Hunt Drive
P.O. Box 800754 - UVA Medical Center

 Charlottesville, VA 22903

 
DONATE year end donations very welcome.






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2025

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2020
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2019
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2017
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2016
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2015
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